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Gaia
Bianca: The face of pediatric cancer |
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When
a child is wanted, planned, and waited for by a complete
set of parents, grandparents, aunts, uncles and cousins,
no means is spared to make sure he/she grows up to
achieve his/her potential. Or even if she is a single
mother who dreamed, desired, and finally achieved
this child after an eternity of waiting, there is
no doubt in her mind whatsoever what she wouldn’t
do to make sure her child grows up not only to achieve
that potential but also to live long enough to enjoy
its consequences. |
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And this is why Gaia Bianca Pasamba
captured my heart: Her arrival was 12 years in the
making, her parents confidently prepared to bring
her up comfortably in an upper middle class home with
all the hopes and dreams intact.
Named after a Greek creation goddess, Gaia Bianca
was pretty much perfect but what no parent prays,
plans, waits for, or expects, is a child with a life-threatening
disease. At two-and-a-half months, that’s what
Gaia was diagnosed with: Biliary atresia. It’s
a congenital bile duct defect that leads to liver
failure and eventual death. The only mode of treatment
for longterm survival is liver transplant. Which,
unfortunately, is still unavailable in the Philippines.
The nearest hospital that can do it and at costs “recognizable”
to Gaia’s family is in Taiwan (around US$80,000,
or 4 million in peso equivalent).
Gaia awaits her turn for a “normal childhood,”
and while waiting she thrives thanks to her youth,
a superior team of healthcare providers, and the love
of everyone around her. But nature is unmoved and
unfeeling, and as Gaia’s immunosurveilance system
is practically put out of commission by her failing
liver, she falls afoul with Cancer, that other dreaded
disease division that rears its deadly head whenever
our biological defenses are down. Besides her impending
liver failure, Gaia is now confronted as well with
infantile fibrosarcoma, a “rapidly growing but
infrequently metastasizing fibrous tissue cancer that
usually appears on the extremities in the first year
of life.” At first glance, the Medical Dictionary’s
qualifying phrase “infrequently metastasizing”
(does not often spread) sounds like a piece of good
news, if such a thing could be uttered with cancer
in the same breath. But you only have to backtrack
two sentences ago to be reminded that Gaia, an infant
with a failing liver and a severely compromised immune
system, is unfit to wage a battle against cancer of
any kind. And her family’s economic power to
help her wage this war is rapidly decreasing.
This is why I am pro-Gaia: She didn’t get here
by accident or bad judgment. Gaia’s arrival
was planned, anticipated, expected, wanted. She is
everything I want to have myself when I’m good
and ready, a child to love and raise and school and
achieve something that will change the world for the
better. This is why I want to help her parents raise
funds to keep her treatment going, even when I am
unemployed. This is why I ask you, wherever it is
you’re from, to help keep the medicines and
the superior healthcare coming for baby Gaia, who
needs from between $75-100,000 for a liver transplant
she has to undergo in Taiwan or Hong Kong. It is she
who will describe us in the year 2008 and our capacity
to nurse and nurture in edifying terms to the children
of the mid and late 21st century.
Gaia
Bianca is a member of a support group called L.I.F.T.
B.A.B.I.E.S (Life Thru Transplants-Biliary Artesia
Babies Information, Education and Support) Foundation
Inc. Should you want to get more information or extend
other forms of help, the office address is at 32 Sto.
Domingo St., Valley XI, San Antonio Valley., Paranaque
City, with contact numbers: (02) 824-4621; 0918-9263237.
For donations and more information, visit www.gaiabianca.com. |
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| by
Manny Espinola |
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